Sunday, September 14, 2008

Should I continue to have children despite special needs?

A personal story on openness-to-life for the Feast of the Triumph of the Cross

Those familiar with the adoption process won’t be surprised to hear that one of our six adopted children suffers from Reactive Attachment Disorder. A psychologist painted a vivid, mental image of this condition when he described my child as living in a wheelchair that no one else can see. It is hard for those who have not lived with a RAD child to truly fathom the relentless and unforgiving aspects of this condition. In spite of the daily challenges which this condition presents, I have continued to long for more children – and lots of them! I wasn’t sure if this desire was part of my own disordered fervor or an inspiration from the Lord.

Consequently, my prayerful cry was,

“Is it right Lord to adopt more children if You have already challenged my patience, my virtue, my love with such a demanding child? Is it right to bring more children into our family when one requires heroic forbearance by his young siblings?”

I reflected that natural fertility is not removed from a couple if one child is born with special needs. I concluded that having one child with special needs is not a reason, in itself, to stop having children.

Marriage is an unbreakable bond for the expression of fidelity and the raising of Christian children.

I remembered these words of St. Augustine describing the vocation I had been given. Marriage, by its very essence includes children. I found more support in continuing to have children in the Catechism of the Catholic Church,


In this sense the fundamental task of marriage and family is to be at the service of life. #164


While this question pestered me for an answer and the insistent desire for more children continued its assault, I attended one of my formation meetings with the Franciscans of the Immaculate. We were taught that married couples should always pray for children. This prayer is a way for married couples to practice chastity within marriage.

To me, it seemed much easier to discern “open to life” when one has the natural gifts required to have children. I had long ago considered myself barren-as-a-stone. What was I to do? I didn’t have this gift of fertility (or so I thought.) I could add the prayer to my life even if it seemed incompatible to me to pray to have children biologically.

I decided practicing openness to life meant maintaining current paperwork in the adoption process – as best as I could while also attending to my children at home; Doing my best to follow up on adoption leads; Investigating the recommendations of friends regarding agencies. I have believed that doing my best to offer a “yes” to God allowed the Master greater reign in my life. My “yes” allows God to say “yes” or “no.” My “yes” meant I was open – available for more.

With my husband’s willingness and consent, we continued to apply to adoption programs. We did not ask explicitly for special needs children but we were fully aware that children who come from a orphanages or foster care may very well arrive in wheelchairs that cannot be seen.

An interesting twist to this story developed last year with my surprise pregnancy. My doctor told me that I was a carrier for cystic fibrosis. This was surprising news. I was unaware that any of my family had experienced CF. We knew my husband was a carrier for this genetic condition so this gave us a one in four chance that our baby would be a special-needs child.

I didn’t think in pregnancy that my child would have CF. I concentrated on the 75 percent chance that the child would be born free of this condition , a condition which affects the lungs and digestive system. I reasoned, the Lord had given us a houseful of children to care for and the newest had only entered our family a few months ago. I was also dreadfully sick the entire pregnancy. How could I possibly be strong enough to have a medically fragile child? How could this be God’s Will for us?

But, the Lord’s ways are not my ways. I was not thinking with the mind of God.
He did bless our family with a medically fragile child.

In some ways, I feel that the Lord answered my prayerful question, asked throughout my marriage.

“Should I continue to have children despite special needs?”

He answered loudly and in the affirmative.

The Lord loves special needs children. He loves families who are open to life no matter what the cost. He loves hearts which open further when pried by special needs. He gives abundant graces to those who carry their crosses. He makes them more and more into Himself.

The Lord loves special needs and we should not be afraid to embrace life for fear of special needs. Openess to life despite special needs is a true reflection of ...

The Triumph of the Cross.

22 comments:

Anonymous said...

Beautiful Helen, thank you for sharing.
Love,
Margaret

Alice Gunther said...

Thank you for this meaningful and perfect post.

Kimberlee said...

This is a beautiful story, Helen! Those last two paragraphs sum up so much, so very beautifully. Accepting the cross with such grace and peace is indeed a shortcut to the triumph, and yet the cross endures. But His grace endures and sustains as well. Thanks for sharing.

Dawnie said...

What a beautiful post, Helen!

I must say, I have often struggled with this question myself. My oldest daughter is a very difficult child. Whether her difficult behavior is the result of some kind of psychological disorder or just a strong temperament, I'm not sure, but she challenges my patience DAILY! During really bad times, I have wondered myself whether I should stop having babies.

Thank you again for this inspiring post.

Mrs Pea said...

Thank you for sharing your heart, Helen. As an adopter myself, it was wise words indeed when most needed. Prayers for your little one (and your bigger one in the invisible wheelchair too)

Elena said...

This post was refreshing after reading so many posts and articles ob people who deliberately sterilized themselves for a variety of different reasons ranging from not being able to cope with two more more little children at the same time, to having children with genetics disorders. Mom bloggers like you and Barbara Curtis (mom of 10 and adoptive mom of several Down's children) are important to be heard.

NancyP said...

Helen, your words of love and acceptance brought tears to my eyes. Thank you so much for sharing your journey with all of us.

jcastor said...

I found you from Elizabeth's link. Your post was just beautiful, I loved the end. My first daughter is special needs and I remember having a lot of the same thoughts. It brought a tear to my eye to read the last two paragraphs. (I now have two more daughters)

Lisa said...

Helen, this was an inpired and beautiful post. Blessings to all your dear family ~ but, then, you're already blessed!

Allison in AK said...

Found you via Elizabeth Foss and want you to know that our first born ( of 5 ) has CF, too. We decided that to cut off more children would be a message to him that we didn't want to give : NO MORE AFTER YOU AND CF. He is wonderful and the other children look up to him with unbelievable love and admiration. Blessings to you, new friend ! ~Allison

Ladybug Mommy Maria said...

Awesome.

Awesome.

Awesome.

Theresa said...

Thank you so much for posting this, I have been having similar thoughts and prayers, and have wondered whether the answer really is yes, your post sums up so beautifully the love our Lord has for those society would rather turn a blind eye to, and shows that His wisdom is not the worlds' wisdom. You have such a way with words.

Cay G. said...

Well done, good and faithful friend. Your words will bless many.

KC said...

That was beautiful, Helen.

SuzanneG said...

This is beautiful, Helen. Lots to reflect on, as usual. thank you!

a thorn in the pew said...

I am crying but I had to wipe the tears to thank you for this post. I have 2 with aspergers and pray that I have the courage to accept whatever God wants of me. Why do I desire more children? Because He does...
I don't know any other answer. God bless you.

Jennifer in TX said...

Helen,
Thank you for your beautiful words of wisdom. Prayers for you and your dear family...

Elizabeth said...

I'm sorry to hear that your newest little one has CF. God must love and trust you very much to give you these challenges. Thank you for sharing your beautiful thoughts.

Mary said...

God bless you, Helen.

Diana said...

Thanks, Helen for a beutiful post. I am on my second child with a tracheostomy and g-tube, facing several more surgeries, just like her brother....and several kids with other "invisible" things, like severe food allergies and dyslexia...whew..it is not for the faint of heart, but it is for BIG hearts...and God has grown mine beyond what I thought possible with each one...
"Families, become who you are!!!"
--JPII....we're trying, Papa!!!

Blessings,
Diana

Paenitet said...
This comment has been removed by a blog administrator.
Paenitet said...

thank you for your wonderful witness helen :)

blessings-
kristin g